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Greater Than One Percent
A few weeks ago I saw a post by a mom of an autistic child in my blog feed. She was livid about this news out of NYC – about America’s super wealthy “renting” disabled persons for their Disney...
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Autobiography of a Face; The Shape of My Heart
In 2010, when I was writing Heart Warriors, I read Lucy Grealy’s book Autobiography of a Face. I read it after first reading Ann Patchett’s tragic book Truth & Beauty,written about Grealy....
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Day Thirteen: A lighter shade of pale, or when you’re glad it’s a virus
Liam requested chicken noodle soup for dinner. Liam doesn’t like soup. Liam came to dinner holding his stomach and didn’t eat his soup. Liam went to bed at 6:00 pm with the giant popcorn bowl, a...
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Moving on . . . or I’m SO over Shaun White
I hereby declare that this is the last time I will ever write about Shaun White. Why? Because I’m over it. I’m over him. I’m done with this topic, and I’m moving on. I wrote this article on Dec. 18th...
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$1.99 on Kindle
Apparently, Heart Warriors is on sale for $1.99 on Kindle right now. Merry Christmas! PS – I didn’t know it was going on sale and I don’t know how long it will last.
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It Was a Monday
I am not sleeping, so I will write. Tonight (which is now yesterday) at dinner, Liam asked, “Do you know what today is?” and Jim and I looked at each other, just briefly, before I asked Liam to tell...
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Half-heart, Whole Body: Part Two, B-R-A-I-N-S
Recently, at the behest of our cardiologist, we met with a neuropsychologist who administered a great many tests and even called our son’s teacher for an interview. There was no recent trigger for this...
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Eleven
I wrote this on Facebook tonight. What a blessing it is to forget. Eleven years ago right now, I was drifting off on my very first overnight in a hospital, 22 hours later I would have a living child....
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G is for Graduation, H is for Holter
Staying true to not writing about Liam’s personal life, I’m going to do my best to share only my feelings. Sufficed to say, Liam has never, ever liked Holter monitors, a documented historical fact, and...
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The Fault in Our Hearts
I’ve never read The Hunger Games, or The Fault in Our Stars. It’s not that I’m dismissive of young adult (YA) literature, it’s just not my thing. I also don’t read westerns, mysteries, science fiction,...
View ArticleIt Can’t be Bought
I strongly believe every one’s happiness is his/her own responsibility. I can’t make anyone happy except myself, and no one can make me happy except me. I hold that standard… Read more It Can’t be...
View ArticleJust a Dream
6 If I can stop on heart from breaking, I shall not live in vain: If I can ease on life the aching, Or cool one pain, Or help one fainting robin Unto his nest again, I shall not live in vain. ~ Emily...
View ArticleAn Anniversary Book Excerpt
I may have mentioned that I got the rights back to my book, Heart Warriors, A Family Faces Congenital Heart Disease. I am almost done with rewriting it to include my journey with post traumatic stress...
View ArticleMemories: Why I Can’t Love Mothers Day
I’m going to come right out and say it – Mothers Day is not my favorite holiday. It has absolutely nothing to do with the holiday itself, and I don’t resent anyone else enjoying it. It’s just hard for...
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